Caring for people with advanced progressive disease offers many challenges for both professional caregivers and family. The course of advanced progressive disease can be described as the gradual loss of patient’s independence. Zimmermann et al. (2014) argues that advanced progressive diseases are yet to receive an effective cure; however, efforts can be made to make the lives of these patients productive and meaningful. As such, the idea of palliative care emerged.
Palliative care is a holistic approach that incorporates professional caregivers as well as family carers in treatment of the patient. It handles the patient and carers from all angles of life including spiritual, emotional, psychological and physical. Each member of the family usually experiences a number of emotional reactions during patient care.
According to Wong and SW-C Chan, there is a study conducted in 2007 showed that patient relative’s needs: emotional and informational support, communication support, Social and physical support. Moreover, Cultural beliefs played a part in influencing family emotions and concerns. Therefore, nurse’s role is to help these families to improve their quality of life by supporting them with the previous supporting domains to minimize their suffering.
Summary of the slides
Advanced progressive disease refers to any condition with live threatening diseases, irreversible and not cured(Laney et al. 2012). However, with certain medicines and palliative care can control the sign and symptoms. It affects a person’s psychological, physical, emotional and social life. According to Wong and SW-C Chan, there is a study conducted in 2007 showed that the patient and the family need emotional and informational support, communication support, Social and physical support.
Through the years, nurses have been presented with many strategies and theories such as the last theory of palliative care, to support patient and their families. Palliative care is defined as an approach that improves the quality of life of patients and their families facing the problem associated with life threatening illness due to that, new research mentioned family most involved with care schedule (Polek et al. 2013).
Carer refers to anyone who regularly looks after patient with life threatening disease. It can be a friend, family member, multidisciplinary team or unpaid person. on the other hand, It’s difficult to define this term and it’s may be different to each person depending on his/her personal situation and cultural background . But in general the people you live for, laugh with and love. Those who continually show up, stay up and make up, who make you glad you never give up
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